Wednesday, April 19, 2006

131: You Can't Spell Chemo Without...

We'll need to rewind a few days. On Thurday or Friday, perhaps during an intense ping pong battle, i twisted my lower back. Sure, it hurt over the weekend but on Monday evening, I couldn't even move. I swear to you I had to crawl out of my bed and down the hall to get to the bathroom. It was that bad. And Tuesday was even worse. I was useless at work. I even had to leave early...

This morning, it was no better. Bending over to put on socks was impossible, so i had to just push my way into my shoes. Getting to the bathroom to brush my teeth took twenty excruciating minutes. Getting into the car was more like falling over into the seat, hoping that, like a trust quilt or something, i would be safely caught. I was. It still hurt. In the few months now that i've been going to the oncologist, i've never arrived feeling sick in the slightest. That all changed today as i hobbled and shuffled my way through the door. Sure, it has nothing to do with lymphoma, but i'm a-hurtin' so gimme dem drugs. It is 8 AM.

First order of business. I get weighed (with all my clothes, shoes, mega-bling): 190. And then i step slowly and painfully over to the chair where blood will be drawn. Blood pressure fine, pulse fine, temperature fine, red blood cell count fine, white blood cell count fine, platelets fine. I am escorted into the chemo-room. A large area with comfy leather recliners, each next to an IV tree, a table with kleenex, a bunch of chairs, etc. I choose the one in the furthest corner. My mom wanted to come hang out with me, bless her soul, so she pulls up with a nice breakfast sammich, some coffee, and a bunch of sodoku puzzles. I was hooked but i've tapered.

The next order of business. It's 9:15 AM. In goes the IV, wrapped up tight with a nice smiley face bandage. I get a saline solution drip and a quick push of benadryl. Feeling fine until the benadryl kicks in. I"m lightheaded and i can barely talk. it's as if i'm summoning words from a different section of my chest and my lips don't exactly remember how to mouth it out. Is this supposed to happen? Guess so. Meanwhile, my back is aching terribly and i can't even get comfortable enough to close my eyes and snooze. Woe is me.



First on the menu is Rituxum and they are giving it to me slow to make sure no odd side effects come on. They'll gradually up the dose every 45 minutes or so. Sometime during the first stages of that, i fell asleep. I woke up to the alarm on my IV tree and literally jumped out of the seat. much to the dissapproval of my aching back. This all happened in quick succession. Imagine it. Ding! I jump up! I moan because of the back! My hands are numb! The nurse asks "are you itchy?" Confused, i say no. And she leaves. Immediately after she said that... i got itchy. My head. My ears. My arms. My chest... I was going to tough it out until my mom noticed the sides of my face turning red. She called the nurse over. I had broken out in itchy hives. Common side effect. Enter a side dish of some steroid. Treatment begins again.

This goes on for FIVE hours and we haven't even gotten to the good stuff. The actual chemo. It's called Vincristin and before we jump there, i have to receive an anti-nausea med and some atavan. While that's going in, we talk about Vin's side effects. The nurse matter of factly says "you'll lose all of your hair from head to toe." Esscuse me? The doctor said it would only thin. But oh well. Better start looking for hats. Or clown wigs. I should expect that in about 2 weeks. Other exciting side effects that will come on slow: nausea (got pills for this), constipation (pills), fatigue... and also an increased chance of catching infection... hence i'm getting a white blood cell boosting shot on friday so i'll be all good for my trip next week. I'm going on a trip next week. Didn't tell you? I will...

So, the vincristine gets pushed in after i sign the release form and then comes another drip: cytoxin and THAT goes for an hour and a half. I'm outta there around 4:30. One down, three to go.



***

In other news, I'm aware that the City On Film website is on the blink. I'm trying to figure out the best way to bring it back to life. Doesn't help that i don't actually own the domain name. Or the webspace... I'm considering starting a whole new website. Something that could encompass everything. City On Film PLUS. More thinking to be done.

20 Comments:

Blogger kyle said...

A close friend of mine went through chemotherapy last summer. Right before he started treatment, his parents held a benefit supper for him at the local Elks lodge, and myself and about 30 other people ended up getting our heads shaved before we left, including two girls. My friend with cancer was in attendance, and he did a lot of the head shaving, so it must have been a great morale boost to see that many people voluntarily lose their hair before he did.

Anyway, he went through treatment for lymphoma for a few months. The tumor behind his lungs shrunk and his doctors were eventually able to remove it completely. He's doing great now, the whole chemo deal didn't slow him down for long at all. Oh, and the hair grows back pretty fast after treatment, Bob. Good luck with everything, I'm sure you will find yourself in good health again in no time. I'm really hoping to be able to see you play in New England sometime within the next year.

11:26 PM  
Blogger mike said...

Hang in there, Bob... By this time next week we'll be dodging undesirable, tropical street vendors and forcing Lauren onto rollercoasters! Ahhh!

12:07 AM  
Blogger mike downey said...

it sounds like you have the right attitude: upbeat, comedic and positive. and that's, in my opinion, easily half of the battle. stay positive.

my experience: i had some major back (spine) surgery when i was about 16. i was supposed to be layed up in the hospital for 2 weeks and then another 2 weeks in bed at home. But because of what i believed to be positive thinking I was back in action in about half of the expected time. so Bob, keep it up, and I wish you the extreme best while you get through this.

7:02 AM  
Blogger CBK said...

Man, you make one surly looking patient. Keep your spirits up. Maybe you'll look like the lead singer for Vertical Horizon for some of your shows. :-)

Good luck and take good care.

9:15 PM  
Blogger nathaniel said...

Watch your mailbox for something from me in about 3 weeks, Bob. I've presents!

xoxo,
nc

11:34 PM  
Anonymous Anonymous said...

Love ya, and hang in there!

11:58 PM  
Anonymous owen. said...

man, you really are in the wars lately. i hope you're feeling better soon physically, but you don't sound too bad emotionally/mentally, which is nice to hear [read...].

5:33 AM  
Anonymous lindzi said...

hi bob, i'm close to you. u are great. ciao

6:22 AM  
Anonymous Anonymous said...

stay strong mr. nanna. you have an army of well-wishers behind you.

3:24 PM  
Blogger TBELL said...

That picture is amazing. You look so pissed!

9:03 AM  
Anonymous Tanya said...

My mother underwent chemo when I was 9, and up until I read this I had no idea what chemo actually entailed. I always wanted to ask people who had been through it, but felt that it would be too invasive of a question. Thank you and good luck.

10:29 PM  
Anonymous Anonymous said...

Hi Rob!

it's April...I was just thinking about you so I figured I'd look you up and see how City was going for you. And then I read this. (sounds silly, but I cried, and my mom was shocked) OH MY GOD, sweetheart, I'm sooo sorry. I hope all goes well for you, and the trip sounds like something you need. Ursula was floored to when I told her, and she sends her sentiments. Well doll, if ya ever feel up to it, and ya want to see some old friends, let me know. Hit me up at fantomblazer@sbcglobal.net

:) April

4:35 PM  
Anonymous Anonymous said...

Hey Bob, I was just checking on you seeing whats up, and noticed blogs about chemo! whats up? i havent heard anything about this.
someone fill me in!

www.myspace.com/ipretendtochoke

well, you seem to be doing great! hang in there bro!

XO
mike

5:03 PM  
Anonymous Anonymous said...

Wussup Bob. im the same kid that messaged above. ive tried researching Extranodal marginal b-cell lymphoma, and im not quite sure what that is, other than something to do with your immune system. they keep dropping medial terms, and i got lost in all that.

well, you are in my thoughts. your music has touched all of our lives. so the next time im driving and singing along to friction/braid/hey merc/city on film, ill be thinking of you!

feel better dude!

xo
mike

10:35 PM  
Anonymous Anonymous said...

Bob

your musis is inspiriing to others and i wish there was something we could do to help you through this. your in my thoughts. good luck with everything

3:05 PM  
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